Supporting children with genetic diseases is “crucial”, Health Minister Michael Damianos said on Saturday.

Speaking at an event held to mark World rare disease day, he said the event “highlights the importance of informing people and raising awareness among society of rare diseases and the challenges faced by patients and their families”.

“These genetic diseases may be rare, but they profoundly impact the lives of patients and their families. Everyday life is full of challenges, but also full of unimaginable strength and determination,” he said.

He then offered praise for the Unique Smiles association, a charity which supports children with rare genetic diseases.

“With practical support, they offer relief, hope, and high-quality care. Thanks to the continuous efforts of their members and volunteers, many patients have access to the treatments they need, as well as the support they deserve. These efforts constitute a ray of light and optimism, reflecting that solidarity and cooperation can bring real change,” he said.

He added that his ministry “fully supports these efforts” and “invests in prevention, research, and education with the aim of effectively responding to every need”.

“Today, more than ever, we have the opportunity to advance research, raise awareness, and eliminate the stigma which often accompanies these diseases. Let us join forces to create a world in which no person feels isolated or helpless because of their illness,” he said.