ROUGHLY 160 Cypriots are estimated to suffer from myasthenia gravis, a disease that presents with various kinetic problems that often lead to disability, according to Health Minister Petros Petrides.
“It is an extremely rare disease, afflicting 20 in 100,000 people, which means that 160 Cypriot citizens suffer from it,” he said speaking at an event heralding the Annual European Myasthenia Gravis week – February 24 to March 2.
Petrides said “the disease can be met in any race, gender and age group, and is not contagious or hereditary, though it may develop in more than one member within a family.”
The introduction of a National Committee for rare conditions, he said, marks the first attempt at a holistic and coordinated effort against these diseases.
According to the minister, “the strategy will focus on four areas: prevention, treatment, supportive care and research”, as well as “the introduction of consistent record-keeping of incidents of rare conditions in order to best organise services offering care to those in need.”
The health ministry offers all related services for free, including specialised neurological exams, up-to-date pharmacotherapy, treatment interventions, as well as supportive treatments like physiotherapy and ergotherapy.
“We aim to continually improve our services, and hope that implementation of our new strategic plan on rare conditions will see patients enjoying significantly more advantages than they currently do,” the minister concluded.